is active in Southeastern
Pennsylvania and Northern Delaware, to bring knowledge and help to those
with macular degeneration,
Its is a non-profit
organization, staffed by volunteers.
The Mission Statement for
the Chapter states:
"The mission of
the Delaware Valley Chapter of the Association for Macular Diseases is
to help people with macular degeneration and their families cope with
this eye disease, through direct services, educational programs and
information, and referral to community resources."
All donations to the
Chapter are tax deductible and are solely used to provide help to those in
the Delaware Valley with macular degeneration.
The Chapter holds several
seminars each year at which nationally known speakers provide up-to-date
information on the status of research on causes and potential cures for
the disease. The Chapter distributes a newsletter and provides a
HOTLINE for use by those who require information or help immediately.
The Chapter sponsors an
increasing number of local SUPPORT GROUPS that hold regularly
scheduled meetings at convenient locations throughout the area.
A typical support group
meeting may include a speaker chosen from the local medical community to
speak about the status of treatments for the disease and research towards
better understanding of the disease.
Since depression and fear
often occur when a patient first experiences vision degradation many of
the speakers are selected to give comfort to the afflicted and provide
education about how to best cope with the disease and lead as normal a
life as possible.
Following the speaker,
small groups are often formed to permit sharing of ideas and experiences
between members. This includes valuable information on community resources
for people with low vision, i.e. transportation, libraries, etc. Caregivers
are not forgotten. Programs are often directed to their needs.
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